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Personal information of Tourettes

I am familiar with Tourettes on a somewhat personal nature. My first cousin on my mother's side was diagnosed some years ago with full blown Tourette syndrome. I know through
him how socially devastating it can be. I am well aware of his various tics, vocalizations and what would be considered in normal circumstances, unapproved behavior.

I realize too, that controlling his tourette caused idiosyncrazies would be like controlling a sneeze. That is if one really, really tries, one can stop a sneeze. On the other hand its usually quite difficult to control sneezing. So tourettes can be compared to a sneeze. If you try hard enough you can prevent sneezing, but its extremely difficult. Likewise Tourette.

Even worse, if a tic is temporarily controlled, later even more tics will emerge. Its as if its a volcano that somehow stopped for some time from erupting, only to erupt with later at full force.

One of the worst part of Tourette is the urge to say inappropriate things at the absolute worse times. For example, loudly rapidly repeating hijack at an airport or saying ethnic slurs in front of groups of that ethnicity. Plus appearing drunk and being mistaking for such by police officers. Perhaps it would be a good idea to wear a medical ID bracelet.

Some of the more common symptoms are constant clearing of one's throat, coughing with no medical need to, rapid blinking, winking, grimacing, echololia (repeating other's words, sentences etc), rubbing one's eyes, hair twirling, fiddling with one's clothes, animal sounds, cursing, racial slurs etc. There are many who do these things. The main difference is a person with this syndrome do them much more often and sometimes much more intensely.

There are three main types of Tourettes. Echolalia. That is echoing what people say. Palilalia. Repeating what one says. Copralalia the urge to curse and use vulgarities.
There is the type too that imitates animal noises. Plus one that compels one to use racial or ethnic slurs.

Even though it is usually genetic, up to 15 percent are with no hereditary basis. In other words the cause is unknown or in medical terms, idiopathic.

There are various medications with varying degrees of help.
These include Restoril, stimulents and even caffeine used.
Unfortunately like most drugs, there are side effects. Two of these are drowsiness and or over stimulation depending o what prescription medicine is used.

Tourettes is nothing to do with intelligence. It doesn't lower it or raise it. There are people with the condition who are very bright, retarded and everything in between.

Tourettes is very much related to obsessive compulsive disorder. Its like having a compulse to do certain actions. It is not a psychosis or a personality disorder. Unless an individual with Tourettes has a psychotic disorder as well, they are not under any loss of reality. People with this disorder know perfectly well what they are doing. The person with TS realizes what they are doing regarding Tourettes isn't truly necessary. Yet somehow they feel a need to do the actions involved.

I do know personally of a case of a young woman who developed Tourettes after an extremely tragic, traumatic experience. She was eight years old and she witnessed her father fatally stab her mother. Soon, perhaps a week or so later, she developed Tourette like syndrome.
This is only one such case I know of. So I can't tell if trauma is known for causing TS.
I do find the case a tragedy but interesting

Tourettes is also known as Gills De La Tourettes syndrome. For some to be determined reason, many more males are affected by the syndrome than females. The ratio is 3 boys to one girl.

The most important part of Tourettes is to be understanding of the person with it and realize its an illness. It is not a character fault or personality disorder. It is a condition that is noone's fault or choice.


Contributor's Note

This is dedicated to my cousin Victor with Tourettes. He is on my mom's side. He is a librarian at Library of Congress.

External Links

http://disabilityinfo.ms11.net/

Contributed by mugwort on August 6, 2008, at 7:30 PM UTC.

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